Dear Husband, It won’t always be like this. Our lives will not always feel like we’re rushing, like we’re perpetually late, like we’re always playing catch up. Picking up, dropping off, birthday parties, activities, bending work schedules and just scrambling around. Life will not always be this raising-three-little-kids level of chaos. I try to remember I  won’t […]

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The earth shakes when the doctor places your firstborn in your arms. Your love for him is colored by terror because you are positive that he is going to die with each passing minute. You bring him home understanding that the Universe has made a mistake, that someone more qualified, more motherly will show up […]

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On September 7, 2017 the forth annual World Duchenne Awareness Day will take place. The 7th day of the 9th month has been chosen to represent the 79 exons in the dystrophin gene. Duchenne Muscular Dystrophy affects 1 in every 5,000 male births, and 1 in 50 million female births, there about 20,000 new cases each […]

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Its that time of year again that I sit down to write one of the toughest things I‘ll ever have to write. I ask my family, friends, acquaintances and strangers to donate their hard earned money for a boy that some may not even know, and others who have been blessed to know. I do […]

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Daddy, I was with you as you were fighting for your life. Wishing we could have one more moment with you, to talk to you, hear your voice, or at least just say goodbye. That moment did not happen. I felt your last heartbeat, a feeling that I can never forget. I only hope and […]

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Losing a parent is one of the most difficult things in the world and people want to know how to deal with it. It’s strange that I have seen family and friends lose parents but haven’t heard much from them about what it’s been like. When my grandparents died, I knew it was hard for […]

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The evening of a new school year and  what I feel is a new bigger school for Jahan. Tonight as he sleeps he hugs his “turtley” and superhero blanket that gives him strength apparently. I wish these super hero blankets did really work with the powers he describes for it. Most parents feel concerned about […]

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I feel a little up in the air these days. And it has been awhile since I have written, so I thought maybe putting it out there would help ground me and gain perspective. So many life changes in the last few months. Dealing with the loss of my father, finding out who is really […]

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June 4th, a day filled now and forever with so much emotion. It is my father’s birthday. A day that now shares such a deeply sorrowful memory for me. My father Barjinder Singh Bedi passed away on April 18, 2016 and I still cannot comprehend how fast it all happened.  It is not a secret my dad and I […]

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