The earth shakes when the doctor places your firstborn in your arms. Your love for him is colored by terror because you are positive that he is going to die with each passing minute. You bring him home understanding that the Universe has made a mistake, that someone more qualified, more motherly will show up […]

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On September 7, 2017 the forth annual World Duchenne Awareness Day will take place.┬áThe 7th day of the 9th month has been chosen to represent the 79 exons in the dystrophin gene. Duchenne Muscular Dystrophy affects 1 in every 5,000 male births, and 1 in 50 million female births, there about 20,000 new cases each […]

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