We are approaching the 3 year anniversary of Jahan’s diagnosis. It seems like yesterday that I brought my healthy baby boy home from the hospital, filled with hope and aspirations for his future. It now breaks  my heart realizing how many challenges and battles he may have to face. He is a fighter, and I […]

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Duchenne muscular dystrophy is the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births (about 20,000 new cases each year worldwide). Because the Duchenne gene is found on the X-chromosome, it primarily affects boys; however, it occurs across all races and cultures.   Duchenne results in progressive […]

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