The earth shakes when the doctor places your firstborn in your arms. Your love for him is colored by terror because you are positive that he is going to die with each passing minute. You bring him home understanding that the Universe has made a mistake, that someone more qualified, more motherly will show up […]

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We are approaching the 3 year anniversary of Jahan’s diagnosis. It seems like yesterday that I brought my healthy baby boy home from the hospital, filled with hope and aspirations for his future. It now breaks  my heart realizing how many challenges and battles he may have to face. He is a fighter, and I […]

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