On September 7, 2017 the forth annual World Duchenne Awareness Day will take place. The 7th day of the 9th month has been chosen to represent the 79 exons in the dystrophin gene. Duchenne Muscular Dystrophy affects 1 in every 5,000 male births, and 1 in 50 million female births, there about 20,000 new cases each year. It occurs across all races and cultures.
Duchenne results in progressive loss of strength and is caused by a mutation in the gene that encodes for dystrophin. Because dystrophin is absent, the muscle cells are easily damaged. The progressive muscle weakness leads to serious medical problems. Often by the teen years those affected loose the ability to walk and must rely on a wheelchair, they will also face issues particularly relating to the heart and lungs. Young men with Duchenne typically live into their late twenties.
Duchenne can be passed from parent to child, but approximately 35% of cases occur because of a random spontaneous mutation. In other words, it can affect anyone. Currently there is some great research but still no approved treatment for all and no cure for Duchenne. It is 100% fatal.
The Chahal family would like to start making this an annual event to surround us and Jahan with love, hope, strength, motivation and faith for a cure for this disorder.
This year the event will be at the park near our home, just behind Mount Royal school at the park.
( 65 Mt Royal Cir, Brampton, ON L6P 2K4 ) We will like you to join us between 530-7pm for refreshments and our balloon launch !
All balloons will be $2 donation and you can attach a wish to the balloon! All proceeds will be apart of Team J Run for Muscular Dystrophy Canada. Balloons will be launched promptly at 6:45pm!
If you cant make it, just do it from home!!!
Release a red balloon on Septemeber 7 to bring awareness and show support to this worthy cause!!
Want to learn more about Duchenne: